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It all started in Mar?92 in Chittaranjan, India(It is a small railway town). I got high fever with chills in the evening and overnight my right leg got swollen. Then doctors at local railway hospital gave some antibiotics to subsidize the fever. Pus was formed after couple of days at the bottom of the ankle. They operated and removed all the pus and infected blood. Then they did dressing for two weeks and the leg become normal. They have advised me to take tablet Hetrazan(diethylcarbamazine) 100 mg thrice daily for two months. In Nov'93 I again got the same type of fever, the local doctor thought it as malaria and gave medicines for the same for one week. When the fever has not come down due to above medicines, after initial blood tests and other examinations he diagnosed it as Filariasis. He started the course for Filariasis like Banocide forte, Florocid injection(Sodium fluoride),weekly once, Hetrazan(diethylcarbamazine) 100 mg thrice daily etc.I used the medicines for one year. The swelling subsidized little bit. In Jun'95 I went to Bangalore and consulted doctors at St. Johns Medical College, they did various tests like growth hormone, Eye Perimetry, CT Scan etc(all normal) and diagnosed that there might be minute tumor in brain. Afterwards they ruled out that also. In Nov'95 some of my friends suggested to take homeopathy medicines as there are medicines for this type of diseases in Homeopathy. I took Medicines from renowned Homeopathy doctor. I took those medicines for 2 years. While using these medicines I got swelling on my hands also. In Nov'97 I consulted a renowned internal medicine physician he did all the tests and advised to consult Endocrinologist who is a professor in a teaching institute. In Mar'98 I got high fever with the swelling in Left leg. I was admitted at local railway hospital in Chittaranjan, India and they gave some antibiotics to reduce my fever. For swelling they said they cannot do anything. In Jun'98 I consulted a doctor, who was head of Department of Endocrinologist Osmania University, Hyderabad, India . He has ruled out clearly my disease relating to his department. He has advised to consult General Physician. Then I consulted the general physician, who was a teaching professor at Nizam's Institute of Medical Sciences, Hyderabad, India. Through examining my case history and symptoms he diagnosed it as Filariasis I consulted various doctors at Apollo hospital (Hyderabad, India), there also they ruled out anything related to Endocrinology, There they did Lymphography test in which they diagnosed (pure drainage of lymphatic system) it as congenital lymphedema(Enclosed the report). Then in Jul'98 I went to Command Hospital (Armed Forces Medical College) Pune, India there also doctors done all the tests like MRI of brain and Growth hormone for Acromegaly or Gigantism but the test results were normal. One of our relative told to check in Unani (traditional medicine) that if there is any medicine as they are doing research in these kind of diseases; I went to Bhadrak, Orissa, India (Research Centre for Filariasis) and took Unani medicine for 6 years i.e till May'04. By using this medicine the frequent fever I used to get regularly has stopped and the swelling also subsided to some extent. In May'05 I again got the same type of fever with chills and I was admitted to command hospital Pune. My left leg got infected and the doctors operated and removed the entire puss and infected blood. Referred the case to plastic surgeon; the plastic surgeon ruled out plastic surgery as the swelling will again recur after two three years. He told to take Lymphapress therapy. He has told to do compress treatment (Putting the legs upwards with support of pillows while sleeping and crepe bandaging the legs in day time.). And also told to use Penicillin injection once in 21 days, so that it will minimize the chances of fever. After this I relocated to Hyderabad due to change in job. During these nine years I found that swelling is increasing gradually. In May'12 I went to Madurai, India and consulted a doctor of Gurumithren Hospital, he also done all type of investigations and advised me for surgery. He has advised for the bypass of the lymph nodes. Also the hospital was not that renowned and not well medically equipped. I felt the surgery little bit complicating. Also my family members were afraid that at present I able to walk and do my work and job, if suppose after such complicated surgery any secondary complication happens then I will be bedridden for life long. Even I took second opinion of the surgeons/Plastic Surgeons here in Hyderabad but they also ruled out any surgery for it. At present I am using compressive bandages and taking penicillin once in three weeks. Also I am using Ayurvedic (traditional Indian medicine) since last two years. As the swelling is increasing gradually I am finding difficulty in walking for long distance(around 1-2 miles) etc. so I consulted a Plastic Surgeon doctor at Krishna Institute of Medical Sciences, Hyderabad, India for any recent medical advancements. He has examined my case and advised to use Lymphapress Pump and told to contact you. please do help as i have went to many institutes for the same. it would be helpful if i get any advice from here.

1 Doctor Answered
Hi. You have suffered a lot. But unfortunately you have either filariasis or congenital lumphedema with intermittant infection. The result of lymphovascular anastomosis or nodo venous shunt depends on the lymphangiography findings. If there are channels which are open, the results can be dramatic. We need to analyse your lymphoscintography befor e commenting on the surgery. Till then continue with lympha press and massage and limb elevation,
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