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I am 33 year old male. I am early diagnosed with chari malformation type 1. Currently I am suffering from syringomellia. I can't sit on floor and stand without support. Most of time I am laying on bed. Walk about 100-200meter daily with walker. Currently I am facing urine problem there is no force in urine. Frequently urination in night 3-4 times. My penis front part most of time under. There is no erection in penis. So we need suggestions ant treatment.
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All these symptoms are due to syringomyelia so do a mri of spine and show how much is there compression and which nerves are involving.
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