The doctor told me that I have familial MONOMELIC AMYOTROPHY but none of my family member has this. Only my elder brother has same problem but not so severe. My hands have wasted and nerves can be seen. I am unable to lift anything for a long time with my left hand. One doctor advised me to take FOLVITE tablets but still there is no improvement. Can any doctor please suggest me some medicines so that I can regain my strength in my hands?
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Medicine cannot do much and it is disease you have to live with . Familial does nt mean all will have in the family
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Monomelic amyotrophy is type of motor neuron disease. Motor neuron disease is type of degenerative neurological disorder in which the nerve cells in specific parts of body gets automatically destroyed so that muscles in the body degenerate and got wasted. In familial cases some of the family members (not all) carries a defective gene which are responsible for this spontaneous degeneration of nerve cells. Though motor neuron disease is a dangerous non treatable fatal disease, monomelic amyotrophy very fortunately a rare variant of motor neuron disease which usually does not progress after certain stage, but muscle that already damaged can not be recovered. Till date there is no specific curative therapy not available, but number of researches taking place throughout world. Probable some of them may become successful to create some hope in near future. But you get relaxed that at least your disease is not that much serious or fatal, but what damage already occurred that is not reversible, so learn to live with that disability, only thing you can do and motivate yourself.
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