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Our daughter now aged 18 years was diagnosed with Bilateral Nephrocalcinosis in year 2010. Her creatinine level was 1.7 in 2010. She had enlarged kidneys with calcium deposition. Her kidney function has since then gradually receded. Following are here test results in 2018: ?creatinine level has reached 4.3 ?GFR around 15. ?Hemoglobin keeps varying, now at 6.5. ?Serum Iron is 21 �g/dl and saturation is 6% ?PTH Intact is 415 pg/ml ?Echo test and Liver Function Test are normal For low hemoglobin she is taking Iron supplements and also IV Iron drips along with Darbepoetin injections sometimes. Calcium supplements and Sodamint (bicarbonate tablets) are being advised by doctors. She was under medication for High BP, but its now under control. She does not show any kind of symptoms like Vomiting or Swellings as asked by Doctors. Doctors are now asking us to be prepared for Dialysis and kidney transplant in near future. We look forward to any feedback or information which can help us prevent Dialysis and Transplant by reducing her creatinine level and improving her Kidney function. Kindly revert with your positive feedback.
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This disease leads to slow and Steady deterioration of kidney functions. This is indicated by low hemoglobin and rise in creatinine, presently there is no such medication to improve renal function, we can support body with darbapoetin and other medications. If even with these supportive measures, she becomes symptomatic, need to take options of renal replacement therapy in future.
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