Question

I am suffering from inclusion body myositis Have muscle loss in thighs, have difficulty in climbing stairs, coming down from stairs, getting up from chair. Is there any solution to this disease.

Dr.Julie Mercy J David · Accepted Answer

Starting an exercise program
have your physician clear you for exercise. Do not start exercising if you are currently in an inflammatory flare.
Seek expert guidance from a physical therapist who understands myositis diseases. Have the therapist work with you to develop an individualized treatment plan.
With the guidance of the therapist, learn how to do the exercises correctly. After that, you can probably do them on your own.
Each person must find the proper exercise program that is right for them. Exercise should be designed to strengthen muscles and muscle groups that are not affected by your disease process, while protecting the muscles that are affected.
The proper program means you will notice improved efficiency with essential daily activities and be able to perform those activities without overuse of involved muscles. If you find you are working much harder to perform normal, everyday functional activities, the exercise is probably causing undue stress to involved muscle groups, and you should consult with your physical therapist to see how best to change your program.
If your physical or occupational therapist is unfamiliar with myositis and the exercise needs of myositis patients, show them the information on this page and other areas of the myositis association’s website.
Myositis and the muscles
one of the reasons myositis patients feel fatigued is because their muscles are weakened by the disease. Movement relies on many muscles working together, so when one muscle or muscle group becomes weak, other muscles must work harder to compensate. This causes fatigue.
It is natural to want to avoid movement when muscles are painful and fatigued. Sometimes people are even afraid that exercise will cause damage or increase the progression of the disease process. But avoiding movement only makes the pain and weakness worse.
Muscles that are not exercised regularly become weaker and can even atrophy (waste away).
Muscles will begin to lose strength within 24-48 hours of inactivity. Maximum muscle strength is lost within the first six weeks. The only way to recover muscle strength is by using your muscles. If muscles atrophy, they cannot be built back up again.
That’s why exercise is so important. Exercise keeps weak muscles from atrophying and helps the body compensate for weakness by strengthening the surrounding musculature.
Tips for smart exercise
find an activity or exercise that is both appropriate for your own level of function and enjoyable for you. For example, walking, gardening, resistance training, or swimming. Exercises can easily be adapted as needed.
Exercise should be incorporated into your daily life, so it is part of your usual routine.
Especially in the beginning, take it gentle, slow, and steady. Overdoing it can cause symptoms to flare. If you feel overly fatigued or in pain the next day, you’ve done too much. Stay in tune with your body, so you know where your limits are.
Take time to warm up. This gradually increases blood flow and heart rate.
It’s also important to cool down, allowing your body to gradually recover.
Gradually build up the intensity and duration of exercise to a rate of exertion that you find somewhat challenging but not overly difficult. It may take 6-12 weeks to adapt to a new exercise.

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