Fibrodysplasia Ossificans Progressiva Questions

My advise for you to first get a routine blood check up (cbc, rft,lft, s.e, lipid profile, thyroid profile, vitamin-d and vitamin b-12 level) .share the reports than you will get better answer in my opinion.

Visit the doctor, he will reduce the dose and then gradually increase or will give some other drugs. You need to take medicine for long term to slow the disease process.

Diet for weak bones
Good sources of calcium include:
milk, cheese and other dairy foods.
green leafy vegetables, such as broccoli, cabbage and okra, but not spinach.
soya beans.
tofu.
soya drinks with added calcium.
nuts.
bread and anything made with fortified flour.
fish where you eat the bones, such as sardines and pilchards.

Tarpan karma is best in ayurveda to treat such problem, you can consult an Ayurveda panchkarma specialist nearby.

You can search on Lybrate and read reviews also...
You can consult me through Lybrate for homoeopathic treatment..

As it is a genetic disease and hence symptomatic treatment needs to be given and use sun glasses while going in direct sunlight and not to allow him to drive vehicles in future

RP is an inherited disorder that results from harmful changes in any one of more than 50 genes. These genes carry the instructions for making proteins that are needed in cells within the retina, called photoreceptors. Some of the changes, or mutations, within genes are so severe that the gene cannot make the required protein, limiting the cellís function. Other mutations produce a protein that is toxic to the cell. Still other mutations lead to an abnormal protein that doesnít function properly....more

Consult a homoeopath.. and cant name the medicine as there r many and only after details i will be able to select.

Dear Lybrate user

you need homoeopathy medication along with body ergonomics exercises.

that will surely help you

hello
I am sorry but there is no medicine or surgery to treat RP.
BUT please dont loose hope...there is new technology coming up "BIONIC EYE".this will help you