Ectodermal Dysplasia Health Feed

Diet for weak bones
Good sources of calcium include:
milk, cheese and other dairy foods.
green leafy vegetables, such as broccoli, cabbage and okra, but not spinach.
soya beans.
tofu.
soya drinks with added calcium.
nuts.
bread and anything made with fortified flour.
fish where you eat the bones, such as sardines and pilchards.

The medical term spina bifida or spinal bifida refers to a congenital defect in the spine. In simpler terms, spina bifida is a defect in the neural tube. Based on the severity of this disease, spina bifida can be divided into three different types:

Myelomeningocele
Meningocele
Occulta
The symptoms of spina bifida vary depending on each of these three types. Let's take a closer look at its symptoms here:

Myelomeningocele

Myelomeningocele is the most severe...more

It’s overwhelming to learn that your child has dmd. Remember that the disease doesn’t mean he can’t go to school, play sports, and have fun with friends. If you stick with his treatment plan and know what works for your child, you can help him live an active life.
•stand and walk as much as possible. Being upright will keep your child’s bones strong and his spine straight. Braces or standing walkers can make it easier for him to stand and get around.
•eat right. There's no special diet f...more

Hi lybrate-user,
I appreciate you seeking help. Neurofibromatosis is a genetic disorder. Surgery cannot completely cure the same but it can help treat complications arising out of neurofibromas, if any. However, Neurofibromatosis can be controlled successfully using natural medicine, and appropriate dietary/ nutrition support which can slow down/ arrest the disease progression as contextually possible. You can consult with complete details, for further traction. Take care & best wishes.

What Is Kyphosis Disease?
Kyphosis is an exaggerated, forward rounding of the back. It can occur at any age but is most common in older women.
Age-related kyphosis is often due to weakness in the spinal bones that causes them to compress or crack. Other types of kyphosis can appear in infants or teens due to malformation of the spine or wedging of the spinal bones over time.
Mild kyphosis causes few problems. Severe kyphosis can cause pain and be disfiguring. Treatment for kyphosis d...more

Ataxia-
The muscle coordination in the body will perform crucial functions. A perfect coordination is required to deliver a speech, walk, move, swallow food, drink water and pick up objects. You will be able to perform various kinds of voluntary movements if there is perfect coordination of muscles. There are many causes which lead to Ataxia which include head trauma, stroke, alcohol abuse, tumour and multiple sclerosis. As there are many types of Ataxia, the doctor will figure out the type...more

There is no medication as such for DMD in any system. As said Physiotherapy will help to prevent contractures worsening of the condition. Please register in the Muscular Dystrophy society as they will help to keep you updated on any newer form of therapy.

Syp. Nurosmart 10 ml two times in day for 3 months if you have any questions or query please consult on privet conversation on this app thanks.