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Home > Ectodermal Dysplasia > Health Feed > Questions

Ectodermal Dysplasia Questions

Asked for female, 43 years old from Sangli

My son is suffering from nf2. He is 18 years old and fibroma all over body. His left leg below knee has huge plexiform fibroma. Had several surgeries but still growing. We went for homeopathic treatment for 2 years but no satisfactory results. Please help.

Dr. Prakhar Singh94%(9607 ratings)

MBBS, Basic Life Support (B.L.S), Advanc...read more

General Physician•Delhi

Those suffering from NF2 commonly have problems with hearing and sight, and the slow degeneration of those senses can make it incredibly difficult to communicate with anyone, including their medical providers. But we have to look into the details of the problem. Let's have a detailed discussion to ensure proper treatment.

10 people found this helpful

Asked for female, 25 years old from Chennai

Hi sir, I am 25 years old and I got married having a girl baby 2 years old. I have. The neurofibromatosis defect of developing brown patches and some painless lumps development over the body. My husband feels guilty when somebody asks what's that for your wife as he doesn't know the source. These neurofibromatosis defect started from my grandmother to my mother and now to me and my sister. We have brown patches over the face and also throughout the body. Please provide me suggestions from recovering in this.

Dr. Prakhar Singh94%(9607 ratings)

MBBS, Basic Life Support (B.L.S), Advanc...read more

General Physician•Delhi

Melasma is a condition in which areas of the skin become darker than the surrounding skin. This call hyperpigmentation. It typically occurs on the face, particularly the forehead, cheeks and above the upper lip. Let's have a detailed discussion for better advice and medication plan.

7 people found this helpful

Asked for female, 23 years old from Hyderabad

Hi sir, I was diagnosed with hydrocephalus 13 years ago when I was 7 years old replaced stunt 10 years ago now I have to know that how often vp shunt works and a person with already who have vp shunt can go for etv surgery. Is etv surgery is safe with who already have vp shunt I am a medico now now I am getting light headache daily and frequent urination why?

Dr. Sajeev Kumar91%(40820 ratings)

C.S.C, D.C.H, M.B.B.S

Cardiologist•Alappuzha

The etv surgery is safe and you can go for it. If you have frequent urination you need to test urine for infection and blood for diabetes.

Asked for female, 24 years old from Agra

Mere friend ke bhaiya ko muscular dystrophy ki beemari hai. But wo iska treatment nhi krwa skte kyuki wo bahut poor hain. Kya iske liye kahi koi help provide ho skti hai. Jisse unki help ho paye.

Dr. Subhabrata Hore(pt)88%(208 ratings)

BPT, BSc

Physiotherapist•Durgapur

There r lots of physiotherapeutic treatment protocol for muscular dys trophy .u can get from youtube but better first consult with a physiotherapist, learn from his what to do whatever exercises he suggests .do continue at home in regular basis.

Asked for female, 24 years old from Agra

My friend's brother is suffering from muscular dystrophy. I want to ask. Is stem cell therapy available for it. What will be the cost.

Dr. Swapnil Sunny

BPTh/BPT, PGDHHM, PGDMLS

Physiotherapist•Gurgaon

Yes stem cell therapy is an option of treatment for muscular dystrophy but the result is varied and not confirmed yet.

Asked for male, 47 years old from Agra

My father is 80 year old. He is effected hydrocephalus disease last 6 month. Letrine nikalati rahati h, urin stomach press karne se nikalta h.kuch khate nhi h gale se liya nhi jata. Legs pr stand nhi ho sakte. Sir m is corna kal m kya kru. Kya treatment du pl help me.

Dr. Sumeet Dhawan92%(18 ratings)

DM - Pediatric Neurology, MD - Paediatri...read more

Pediatric Neurologist•Chandigarh

Need to see the ct scan to see the degree of hydrocephalus. Further treatment has to be decided based on consciousness and changes in personality and behavior.

Asked for male, 27 years old from Kolkata

I have neurofibromatosis. It is appearing under my skin. It generally does not show, but becomes prominent when the skin is stretched. I am getting it on my back mostly. I am having psychological issues because of this. I want to know about the removal methods available.

Dr. Prakhar Singh94%(9607 ratings)

MBBS, Basic Life Support (B.L.S), Advanc...read more

General Physician•Delhi

Neurofibromatosis is a genetic disorder that causes tumors to form on nerve tissue. These tumors can develop anywhere in your nervous system, including your brain, spinal cord and nerves. Let's have a detailed discussion for better advice and medication plan.

5 people found this helpful

Health Query

I have muscular dystrophy which causes me to fall occasionally. In February I fell on the back of my head and it was bleeding and swollen. I did not seek medical emergency. A few hours ago, I fell again on the back of my head and it is still bleeding. Should I be worried? Please then I fell my arms were tingling and I couldn't feel them but it's okay now.

Dr. Julie Mercy J David91%(41326 ratings)

Erasmus Mundus Master in Adapted Physica...read more

Physiotherapist•Chennai

Does your bleeding get stopped after a while or you bleed for a long time. You need to check with your vitamin k levels.

44 people found this helpful

Asked for female, 31 years old from Muzaffarpur

Hi, I am suffering from neurofibromatosis since 15 years. I have black spots all over my face ,back up to stomach. fibroma r getting increasing in numbers. Is der any cure. One thing if I conceive, den will it effect my baby?

Dr. Prakhar Singh94%(9607 ratings)

MBBS, Basic Life Support (B.L.S), Advanc...read more

General Physician•Delhi

Dark spots are common in the back of the hands; face; back; shoulders.Let's have detailed discussion for better advice and healthy lifestyle.

13 people found this helpful

Health Query

How would a diagnosis of both a benign pituitary tumor (microadenoma) and arrhythmia generally affect life expectancy and general health in the future for a 25 year old female? Of course this will depend very much on the specifics of each case, but should you in the average case expect to be able to live a full normal life? My understanding is that both conditions generally can be treated quite well separately, but is this no longer the case when being diagnosed with both simultaneously?

Dr. Prakhar Singh94%(9607 ratings)

MBBS, Basic Life Support (B.L.S), Advanc...read more

General Physician•Delhi

Almost all pituitary tumors are benign (not cancer) glandular tumors called pituitary adenomas. These tumors are called benign because they don't spread to other parts of the body, like cancers can. Pituitary cancers (called pituitary carcinomas) are very rare. But we have to look into the details of the problem.
Let's have a detailed discussion to Ensure proper treatment.

4 people found this helpful

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