Challenges Faced By Haemophilia Patients

Haemophilia is a complicated disease, which is quite rare in its development among humans. The disease can be either acquired or genetic, which makes it even more dangerous. Even though there are several treatments available to regenerate the clotting abilities, Haemophilia is a very hard disease to go through with. Not only on a physical level but even on psychological levels as well. Mentioned below are some of the complications and challenges faced by Haemophilia patients:-

Internal and external bleeding 

From deep internal bleeding in muscles and tissues to uncontrollable bleeding under skin damage, Haemophilia patients have to face the loss of blood on a frequent basis. These bleedings are most common under the muscles, joints and throat, resulting in hampering the passages to breathe, eat and internal blood circulation. Depending on the type, from minor to severe the patient has to stay protected like a fragile valuable. 

Increased Risk Of Infections 

Our blood consists of many elements, which build our immunity against external pathogens. Consistent loss of blood lowers the levels of elements like iron, making the body more vulnerable to infections. High risk of infections is one of the most common challenges experienced by patients. This also increases the need for attention towards patients’ health. 

Rection To Therapeutics 

When the disease is genetic in nature, the treatment plan needs to be in process for the patient’s lifetime. During such extensive treatments and high dose therapeutics, one may face side effects, allergic reactions or other sets of complications that can be both uncomfortable and damaging to the diseased. It is advised to closely monitor your progress and seek medical attention when felt to avoid serious complications of therapeutic reactions. 

Psychological challenges 

While physical challenges are the ones that can be seen or diagnosed by medical parameters. Psychological and social challenges that are faced by the patient often get underrated. Here are some key challenges that might be felt by the patient during Haemophilia and its treatment

• The constant fear of getting injured and bleeding 

• Not able to mix in social groups due to the risk of infections 

• Not able to perform basic activities like going to school or eating certain comfort foods without any risk 

• Often feel low because of constant medications and hospital visits 

• Feeling of “why me?” and “when it will end”. 

• Financial stress due to lack of facilities in India, especially for adults and parents of young patients.  

• Effect on education and overall mental development due to lack of exposure and physical complications